Saturday, February 5, 2011

No Remorse

On Monday, I am setting up a brand new lab. A visitor from the US with lab expertise has come to help us set it up, and I am running around getting the right materials and equipment together.

In addition, word has gotten out that I am back in Tororo, and various nurses and midwives come asking me to see patients. There is someone in labor ward with no fetal movement and no audible heartbeat – might be a fetal demise. Could I do a scan? There is someone in the Gyn ward who might have an ectopic pregnancy. Could I scan? I want to help, but I also need to make the lab my priority. I promise to come later, once the lab has settled down.

Finally, the lab is going, and I am able to take a few minutes. My phone rings, and it is one of our study counselors.


“There is the woman here who wanted to abort, and she is here for an ultrasound.”


I cringe at the fact that he knows this – did she arrive and tell him that she wanted an abortion? Oy vey.


“Ok, yes, I will scan her. Thank you, I am coming.”



When I walk up to the research clinic, it is bursting at the seams. Three months ago, the waiting room was usually full on Mondays. Now, on this Monday, every seat is taken, women and children are all over the floor, seated anywhere they can find, spilling out of the waiting area. Our studies are at their peak enrollment, and it’s crazy on Mondays.

I go looking for the ultrasound, and I find one of the doctors scanning a woman with decreased fetal movement. I take a few minutes to teach the doctor how to check for adequate amniotic fluid. When she’s finished, I take the ultrasound machine with me. There is not a single space I can find in that clinic to do this scan; there are way too many patients to be seen. I decide to bring my patient to the Labor Ward, where there are available beds. Then I can also scan the woman with no fetal heartbeat at the same time. Two birds, one stone.


When I walk to Labor Ward, I look for the patient with no fetal heartbeat, but I can’t find her. I have my patient wait, and I look for other midwives to tell me where the patient went. On the way, I run into three senior midwives, including the Principal Nursing Officer (PNO), who are overjoyed to see me. I get enormous hugs and it relieves some of the stress I feel from having so much to do. Apparently, the other patient has already been seen and was ok.


I go back to my patient. I feel her abdomen first. The uterus doesn’t feel quite 20 weeks, but more than 14. On scan, there is definitely a live fetus that measures at 16 weeks. The nursing trainees who are in labor ward watch me do the scan, fascinated. I write down my findings on the ultrasound form. No one speaks Japadhola, so I bring the patient back to the clinic for a translator.

The counselor who called me about her earlier can speak Japadhola, but he is with a study patient. I ask him to see my patient afterward and explain that she is, in fact, pregnant at 16 weeks, and there is nothing to be done. She should go for prenatal care. He agrees to tell her, and we have her sit in the waiting room until he is ready to see her.

I dash back over, with the ultrasound, to the Gyn ward. The sun is brutal, and schlepping the heavy ultrasound is my least favorite thing about this job. Whaddayagonnado. I take a shortcut through theatre, where I greet some theatre staff.


In Gyn ward, a woman is limping painfully toward the door – that is the patient with the possible ectopic. She doesn’t look good. The nurse has her lie down again so I can see her. In the bed next to her, a young woman looks very sick, crying and moaning with abdominal pain. She looks awful.


“What is wrong with her?” I ask.


“She was admitted for one week with peritonitis in Mbale. Now she came here. Maybe you can see her too.”


“Why didn’t they operate in Mbale? She looks like appendicitis.”


“I don’t know.”


Probably because she couldn’t bribe anyone, that would be my guess. I am not sure I would be comfortable operating on her. I could probably do an appendectomy, but what if it were something else, like incarcerated or perforated bowel? Luckily, I know Dr. W is around. I will mention her to him.


I start scanning the patient with a possible ectopic, but it’s a confusing scan. She has a lot of stuff in her uterus, but no definite pregnancy. She has a lot of fluid in her abdomen, which could be blood – implying a ruptured ectopic pregnancy. She is tender but not overwhelmingly so. The woman next to her looks much worse. This could be a miscarriage or an ectopic, it’s hard to tell. If I had a transvaginal ultrasound probe, I might be able to get more information. But sometimes ectopics are very hard to diagnose. In the US, we have the option of laparoscopy, which looks inside the abdomen with a camera through a tiny incision, so that if there is no problem, you can close up without doing major surgery. Here, if you want to look inside the abdomen, you have to open it up.


I call Dr. W, who I know is around and had requested that the nurse ask me to scan, and I ask him to come and look at the sono. He agrees with my confusion, and we discuss a plan. I suggest doing a D&C (uterine evacuation) first – then if he sees products of conception, he doesn’t have to do a laparotomy. He could also do a minilaparotomy (through a 2-3cm incision) to see if the fluid in the abdomen is fluid or blood – and if it is fluid, he can close the small incision without worrying. If there is nothing in the uterus, then an ectopic pregnancy is almost certain, and a true laparotomy is warranted.

I wish I could operate with him, but I need to go back to the lab. I realize it’s lunchtime and I need to make sure the visiting lab technician gets something to eat. The sun is burning incredibly hot, and neither of us has an appetite for lunch. We go into town to buy a few items for the lab, and we have a lunch of fruit and soda – it’s all we can think of eating in the heat.


When I get back, I need to have a research meeting, so I leave my visitor in the lab. As I walk to the meeting, I get a phone call.


“Hello, Doctor!” It is the Senior Hospital Administrator, with whom I have a great relationship. He always appreciates all the work I do, and never fails to help me get anything I need to help patients – from generator fuel to supplies and equipment.


“Hello! I haven’t seen you yet, but I am around,” I say.


“I am glad you are back. I had wanted to have a meeting with you.”


That was unusual. I have barely arrived and I hadn’t even seen him yet – what could he need to meet about?


“Absolutely. I am going to a meeting now, and I have to work in the lab. How about tomorrow?”


“Tomorrow?” He sounds hesitant.


“Is today better? I think my meeting will be about 1 hour. Can I come by your office after that meeting?”

I have a lot to do, but this man has been so helpful to me – I have to make him a priority. I figure he wants me to give medical advice to a family member or something.


“That is ok. I will wait for you here,” he says.


My meeting turns out to be really fast, and so I head to his office earlier than I expected. When I arrive, there are three Ugandan men in the room – one is sitting directly in front of the SHA’s desk, and the others are further back in the room. The SHA looks serious, which is not typical for him, and he is questioning the man near him.


“So after you saw the patient, how did she come to find the doctor for an ultrasound?” the SHA asks the man.


I realize that the woman that had been looking for an abortion is also in the room, in the back. She is staring down at the floor, looking humiliated. I’m not sure what’s going on. What’s the big deal? Maybe they don’t realize that I saw her on Saturday and told her to come today for the ultrasound.


The SHA asks the man the same question again, and the man doesn’t really answer.


I try to be helpful: “I saw the woman and Saturday, and I told her to come for the ultrasound.”


The SHA, still looking surprisingly serious, holds up one finger and says “Just a moment, doctor.” That is also unusual for him.


The SHA asks the man a third time: “If the patient came to you on Saturday seeking an abortion, and you changed her mind, then how did she come to find doctor in the hospital?”


Huh?


Then I notice the logo on the man’s polo shirt – it reads “Uganda Life International."

Weird - it is the same organization that E had wanted to refer the patient to. But from the discussion, it sounds like she had already been there. This is incredibly confusing.


Finally the SHA, not getting an answer, turns to me.


“Doctor, in order that we don’t keep you waiting, let me explain what is happening. These men are from Human Life International. I will let them explain what the organization is.”


The man in the polo shirt turns to me. “I am Father O____, but I am not here as a priest today. I am the head officer in charge of our organization, which is called Human Life International. Our organization has the objective of reaching out to the community in order to save the lives that would be killed by abortion.”


Uh huh. I figured. I nod politely and say “I have heard of your organization. It is nice to meet you.” I am unfazed. Who cares? I don’t do abortions in Uganda. I’m not going to tattle on this poor woman, if that’s what they’re after.


He keeps talking but there is no additional information, just continuing to explain their objective. Then, finally, he gets to the point.


“We have been informed that you took this woman to perform an abortion on her.”


Uh. What?


“There must be a misunderstanding. I do know this woman, but I did not perform an abortion on her,” I reply.


A man in the back with a computer in his lap speaks up. “We have an informant that has said that you told this woman to come here today, so that you could do an abortion on her.”


“No, that’s incorrect. Let me clarify my interaction with this woman and you will see. On Saturday, I was leaving the clinic, and I was asked by another doctor to see her. We were not sure of her gestational age – she thought she was two months, and she looked about 5 months. In addition, we were not sure she was actually pregnant. She had never had a pregnancy test, or an ultrasound scan. The appropriate next step in this case is to confirm and measure the pregnancy. Because we do not have access to the ultrasound on the weekend, I told her to come back today. Today, she came back and I did the ultrasound. She is pregnant, and the pregnancy is 16 weeks, but because she speaks Japadhola, I could not tell her. So I brought her to someone in our clinic who speaks Japadhola, and he said he would tell her. I left her there with the ultrasound report, waiting for him. That was the last I saw her.”


The SHA spoke up, looking relieved. “Now, you see, Doctor has explained. She did an ultrasound. Now we are settled, and we can finish this discussion.”


Everyone speaks at once, but the man in polo shirt was loudest. “No, we cannot finish because she has not shown remorse!”


I am taken aback by the virulence of his response. He appears to be almost salivating with excitement to accuse me further. But of what? I know the woman is still pregnant, so no abortion was done. Everything I did makes sense – anyone would (or should) have done an ultrasound for her. Naively, I had thought that by explaining the logical medical thought process, everyone would see reason and we could all shake hands and move on.


Now, it is clear that reason is not relevant here. Something else is going on. As I watch these men shout at us, I realize that they have already convicted me in their minds (of what?), and they will not be dissuaded. They seem perversely pleased.


The SHA tries to continue the line of questioning he was on when I came in the room.


“You are saying you saw this woman on Saturday and you turned her mind,” he starts.


“We saw her, and we turned her mind. After she was saved, we sent her home,” says the priest in the polo shirt.


“So how is it that she then came to find doctor to have the ultrasound?” asked the SHA.


“I don’t know. But we saved her, we turned her mind, and then this doctor said she would do an abortion.”


This is interesting. E had suggested sending the woman to Human Life International, but we didn’t realize she had already been there. Apparently, they didn’t change her mind, although they don’t seem to want to admit that. It seems that she walked out their door, and straight into the hospital. I wonder if some of this has to do with their wounded pride – they were congratulating themselves for their heroism, when in fact the woman merely said what they wanted to hear so she could get away.


“Our objective at Human Life International is to save the innocent lives from people doing abortion.”


He points to the woman. It is unclear to me whether she is his implied “innocent life” or only her fetus.


“We have come to investigate because we were called by someone who reported that YOU were doing an abortion on this woman!”


I feel blindsided by this. What is going on? I try to keep my cool. Since they are clearly ridiculous, and since I get prickly around the subject of reproductive freedom, I am already poised to be annoyed with these men. This loud, irrational yelling doesn’t help. I tell myself not to shout the way they are shouting – so that I am always the calm one – and to keep the discussion strictly on what I did rather than my feelings on abortion and the misogyny of reproductive oppression. I have plenty of time to remind myself of these things while the men grandstand and speechify. I try to say only what is necessary, and to say it calmly but seriously, without showing weakness or fear.


“This woman came here seeking an abortion. You told this woman that you would do an abortion on her! You did the ultrasound in preparation for an abortion! You took this woman to theatre to perform an abortion, where you did the ultrasound scan!”


Responding to this is easy. “This woman has never been to the operating theatre with me. Where did you hear that?” I reply.


“You were seen taking her to theatre to do the abortion!”


“I took her to labor ward, so that she would have a bed to lie down on while I did the ultrasound. That is not theatre.”


They look confused for a minute, but then the man with the computer repeats the accusation. “You told this woman you would do an abortion! Abortion is illegal in Uganda, you may not know that. We are here to save the lives of those who might be victimized by abortion, and we are here to investigate. We have information that you planned to do an abortion. That is a crime and it must be investigated.”


“I am aware that abortion is illegal in Uganda, which is why I don’t do them here. This woman is still pregnant, so no one did an abortion on her. Therefore, no crime has been committed. You are right; I have no remorse, because I did the right thing. I provided adequate medical care, which no one else did for her. What are you accusing, that I provided adequate care?”


The SHA backs me up.


“There has been no crime. I think we can all stop talking of investigation now,” says the SHA, getting annoyed at these men, but still trying to be diplomatic.


The man with the computer says “Although the act has not been done, there is still criminal intent, and criminal intent needs to be investigated!”


I don’t know the Ugandan legal system, which has its roots in the British legal system, but I suspect he’s bluffing. It would be absurd to charge someone for what you accuse them of intending to do, unless they actually attempted to do it. Then again, you never know. Legal systems can be crazy, and even more so in dysfunctional countries.


A brief image enters my head of being arrested - the way that the midwives were last year - while the case gets “investigated.” Another image appears of being on trial for “intention” to do abortion in a court here. Several thoughts rush through: American consulate getting involved, Hillary Clinton, Rwanda, Iran, international politics and diplomacy, and what if the American government couldn’t help? That is all very scary, but I do not allow myself to think that through immediately. I bring my focus back to the discussion.


The SHA has responded to the criminal intent comment. In addressing the man with the computer, the SHA said something about him being a “legal officer.” I’m not sure what he means by that. A lawyer? A lawyer should know that this is preposterous.


The legal officer with the computer speaks up again. “We have evidence. There is something called CIRCUMSTANTIAL EVIDENCE that can make a criminal case.” (More hint that he’s bluffing) “We have information that you told this woman you would do an abortion on her!”


I have had it with this “we have information” nonsense. I challenge that directly.


“Who is this person accusing me? You should tell me who it is, because that person should come to this room and accuse me directly. I have already explained, and I have been clear. None of you were here when I saw this woman, so you cannot say what happened. In fact, we have no information at all beyond this supposed accusation.”


“Are you saying that the person accusing you is lying?” says the computer man.


“Yes, that person is lying. There were only two other people in the room with me when I met this woman on Saturday. One of them works with me and it is definitely not him, and the other one is her attendant. If it is not one of those people, then this person was not there and cannot testify to such things. If it is her attendant, let her come and say it to me, because she will know she is lying. So you tell me who the person is who is claiming these things and I will tell you whether or not they were there.”


“We cannot tell you the name of the accuser, because this is an investigation and it is confidential.”


Bluffing again. The SHA calls him on it.


“This person should come to this room and discuss,” the SHA insists. “Doctor has told us what has happened, and now we have no other information. We shall need to discuss the matter with this person to clarify this investigation. We should end this now until this person can come and speak.”


It is clear that these men have no intention of stopping now. They have not brought any new information to the table, nor have they been able to contradict my story at all. But they behave as if they have cornered their prey, and they are savoring the attack.


“This person has accused, and has testified to knowledge of this doctor’s intent. We will take this matter to the police. We shall even take this matter to the first lady, who is deeply opposed to abortion! We shall prosecute this doctor for committing abortion. We have evidence.”


The first lady? Come on. I want to roll my eyes, but of course I don’t.


“This woman is still pregnant. There has been no crime, and this is truly ridiculous.” I say.


The SHA agrees. “Who is the one accusing? Is the patient herself accusing the doctor?”


“No, it is not the patient,” says the computer legal officer, “it is another person. We cannot divulge the name.”


Then the man by the window, who looks very young, pipes up.


“Doctor, what did this woman tell you was her purpose for coming to you?”


I have heard him try to shout that previously, but I ignored it because he was out-shouted by the other men – and because it was a dumb question. There is no way that I am going to incriminate the woman herself.


“As I have said, I do not speak Japadhola, and this woman does not speak English, so we cannot speak directly to each other. I cannot tell you what her intentions were, because I was never able to speak to her myself. I was only able to speak to her attendant, who is not here.”


In my mind, I note that the attendant is not here. Could she be the “accuser” who called these men? She didn’t seem like it, but who knows. Her English was basic as well – could she have misunderstood what I said to them? That is possible. What if she couldn’t understand that we only wanted to do an ultrasound, and thought that we had agreed to do the abortion? Although we specifically said it’s illegal and told her we can’t, it’s always hard to know how much people understood, especially because people are too polite to tell you they didn’t understand. If they misunderstood us, that could be a problem. Worse yet, what if it was a setup? The attendant’s absence is conspicuous – what if she was in cahoots with them to try to catch and threaten a mzungu?


If they do question the woman, what if she says she thought I was going to do an abortion? These men would go even crazier, and wouldn’t care about the fact that the woman can’t testify to what I said, only to what was reported to her. I don’t even know why she’s in the room in the first place. Why would she have gone back to them after the ultrasound, or even gone to the SHA’s office herself? Wouldn’t she want to leave – either to go back to the village quietly, or to find someone who would do the abortion? From the look on her face, I doubt that she is collaborating with them. She seems just as much their victim as I am.


I realize, also, that no one has even spoken to her yet, after about 20 minutes in this room. I feel so sorry for her. She looks terrified and humiliated, and she seems to be subtly curling herself into a ball in the corner, almost willing herself somewhere else. She doesn’t understand a single word. I want to speak up to protect her, and suggest that she be allowed to leave the room, but this has already gotten too intense, and I need to defend myself first.


Eventually the men realize that they can’t get around the fact that I am the only one among us who was actually present.


“We have not spoken to the victim. Let her speak for herself,” one of them says.


The SHA points out that she only speaks Japadhola, and asks if any of the men do. They all look at each other. No one can speak to her. How interesting. They are accusing me so vehemently, and yet they have never actually questioned the woman herself. Not only that, I am the only one who offered her any medical care. She saw them on Saturday and was “saved”, and yet by the time I saw her, she had had no pregnancy testing whatsoever. For all the lamenting over her soul, they don’t seem particularly interested in her personhood.


The SHA jumps in to defend me again. “This doctor has done so much work at our hospital, and she has not asked for any money, ever.”


He is interrupted by computer legal officer. “Well other people take money to do abortions but maybe she is doing abortions for free.”


I take over. “Why would I do abortions? Are you saying that I am stupid?”


I am interrupted by polo shirt priest, “People who do abortions are not stupid.”


I ignore him. “You are saying I am stupid. Because if I were to do abortions, then I would be risking everything I am doing here. As you have heard, I do a lot of work in the wards here as well. If I did abortions, I would put all of that at risk. I also work with the research group, and I would be putting them at risk. I would never, ever do that. The work I do is too important, and I am not stupid enough to risk that.”


“You told the patient that you would do an abortion. You intended to do an abortion.”


“If I intended to do an abortion, then why is she still pregnant? I did her ultrasound this morning, and now it is 5pm. Why didn’t I do the abortion already?”


“We can’t answer that but you had the intention to do an abortion. That is why you did the ultrasound, in preparation for the abortion.”


“So what are you accusing me of? Are you accusing me of providing adequate medical care to this patient? Because it seems I am the only one who did. And, no, I don’t have any remorse about that. I would do it again tomorrow. Because it doesn’t matter to me what the patient came in for, she deserves respect, and adequate medical care. She needed an ultrasound for her own care, and I did it. None of that has to do with performing an abortion. So is that your accusation? That I provided good care?”


We are going in circles. They keep saying the same things, and we keep pointing out the same holes. As I am repeating the fact that two people were in the room with us, I realize what I need to do.


“There were only two people in the room when I spoke to this patient, and I am going to call one of them right now and tell him to come, and you will see what he has to say.”


I call E. “I need you to come to the Senior Hospital Administrators office immediately. It’s an emergency.”


More arguing as we wait. Two additional men who appear to be from Human Life International silently enter the room and sit down as the discussion goes on. E arrives in less than five minutes. As he walks in, people are still talking. E has no idea what they are saying.


“E_______,” I say. “These men are from Human Life International. The woman that we saw on Saturday is here. They are saying that I told the woman that I would do an abortion on h---“


Immediately, the priest in the polo shirt starts yelling objections. “She is informing him of what we are discussing before he has testfied!”


Oh, for crying out loud. Do these guys think they are a court of law?


“We have been discussing for a long time, and he is not aware what we are talking about. Doesn’t he need to know why we have called him here?” I ask.


The SHA quiets them down, and invites E to sit down. Immediately, E takes over the conversation. He holds out his hand to the priest in the polo shirt.


“Hello, my name is E_________ A___________I am the senior study coordinator of the IDRC research collaboration. And you are?”


The priest relents and shakes E’s hand, and states his name.


“Now, you see,” scolds E. “THAT is a proper introduction. That is how we should introduce ourselves.”


The men are stunned into silence. I am impressed.


“Let me tell you first that I am angry. I am angry because you did not call me. Why didn’t you call me? You are wasting this doctor’s time with this, and if you had called me I wouldn’t even have involved her,” says E.


The men don’t know what to say. The priest in the polo shirt tells me to explain the situation to E.


“You stopped me from telling him. You want me to tell him now?” I ask.


“You tell him what we have discussed so he is aware,” they command.


E doesn’t even let me talk. He starts talking.


“Let me tell you what happened. I called Dr. Veronica to come and see the patient. So, in fact, if you were going to call someone, you should have called me. I asked her to help me because the woman looked more pregnant than she was saying. Dr. Veronica and I thought she looked five months pregnant. We NEVER told her we would do an abortion. In fact, Dr. Veronica specifically told her that is illegal in Uganda. She was very clear. Dr. Veronica said that she might not even be pregnant, since she had no pregnancy test or ultrasound. For that reason, she offered to do an ultrasound. The ultrasound is not available on the weekend, so Dr. Veronica offered to do the ultrasound on Monday. We very clearly told this woman that we could not do an abortion because it is illegal. And you never should have spoken to Dr. Veronica without calling me first because I never would have involved her. These accusations are totally false, and I am very angry.”


His story matches mine exactly, because it is true. Suddenly, the mood changes. The men seem cowed and start to cover themselves. They try, less confidently, to make the same assertions – that I had the intention to do an abortion, that I took the patient to theatre, and so on. But E shuts down every accusation immediately, and powerfully. Suddenly, the men are on the defensive.


They start a new line of discussion.


“Well, I think that maybe we can bring this to a close because we have already saved this soul,” (still unclear which soul they are referring to) “and so we can go from here and conduct an investigation.”


Retreat.


E is having none of it. He is not interested in letting them off easy.


“I am so embarrassed. I don’t know how I am ever going to apologize to this doctor for the trouble you have caused for her. She never should have heard about this, because it is ridiculous. This doctor has done so much for this hospital.”


Computer legal officer speaks up. “We don’t’ know her. Of course we know you, but we don’t know her, so we couldn’t know. We had to investigate the accusation.”


“You may not know her, but everyone here in this hospital knows her, because she has done so much work here.” E is right. If they don’t know me, it’s because they never come to the hospital, because everyone there knows me. “You should have called me, because if you had called me first, I would have told you that everyone knows her, and I wouldn’t have wasted her time.”


E continues lecturing them. He is amazing. They try to interject, backing off and talking about how they had “already saved this soul” and so they could move on, but he doesn’t let them.


As I listen to him talk, I know I don’t have to talk anymore. It gives me time to process all of this. I think about all the work I have done in the hospital. I think about the woman who nearly bled to death on the OR table, the eclamptic 15-year-old, and all of the other people that I have literally saved with my own hands. Thinking about all the death and near-death that goes on in that hospital, I get increasingly emotional at the injustice of these bloodthirsty men. They don’t care about all those people, only about the fetuses of women who want abortions, and only until they are born. I would like to believe that people who do this sort of thing really do want to help the women, and are just misguided. But it is painfully clear in this room that the woman herself is irrelevant to their objectives.


As I look around the room, I realize that the Principal Nursing Officer (PNO) has recently entered the room. She was one of the nurses who had exuberantly hugged me earlier in the day. I am confident that she will be supportive of me, because she likes me so much. But she is also and older, quiet woman, so maybe she will be afraid to support me publicly.


As I think about all of this, a text message comes through on my phone. It is from Dr. W: “1.5 liters hemoperitoneum! Ruptured left fallopian tube.”


The patient I had scanned that Dr. W took to the OR did, in fact, have a ruptured ectopic pregnancy. She is lucky to have survived – there was a lot of blood in her abdomen. Seeing that message, I am briefly stunned. The irony is immediately apparent. I want to show the text message to these men and say “Do you see this? I literally saved this woman. I did the ultrasound, and diagnosed her, and recommended that she go to the OR. If I had not done that ultrasound, she might have waited hours or days before going for surgery. THIS is saving a life. And what are you doing?”


But I can’t say any of that. I realize that I can’t talk again, because I am feeling an increasing urge to burst into tears. I don’t want to show this to them, because I don’t want them to see any weakness, and I don’t want them to know how much they have affected me. I have thus far managed to seem irritated and offended, but not emotional and frightened. The more I think, the harder I need to work to hide the tears below the surface. I twist my lips and look at the ceiling to hide my trembling lip and watery eyes.


I want to tell them to come to the children’s malnutrition ward and raise some money to feed those children. I want to tell them that women need ambulances to get to the hospital when they are dying at home in labor. I want to tell them to build roads for those ambulances. I want to ask how many children could have been fed by the cost of one custom, Human Life International logo-emblazoned polo shirt.


More images from my year in this hospital flash through my mind. The feeling of operating on a woman, and not knowing if she was going to survive, the feeling of trying in vain to rescusitate a dying infant – that visceral feeling returns to me. Waking up in the middle of the night and rushing to the hospital for a malpresenting fetus or obstructed labor. I did all of this good work all year – can it all be washed away by the wild accusations of a this predatory peanut gallery? The hospital staff had always been supportive of me, but would these accusations now cast enough uncertainty over my reputation? I don’t know how much longer I can take without bursting into tears.


E is still going, alternately scolding the men and extolling my virtues. He will not let them off the hook. Then the SHA takes over, emboldened by E’s moxie.


“I know this doctor very well. She has done so much work in this hospital. You have no idea how many patients she has worked on, how many lives she has saved. We owe her a debt. It is NOT only me who owes her a debt, NOT only the Tororo Hospital that owes her a debt, but the ENTIRE TORORO COMMUNITY! The entire community owes her a debt that can never be repaid. She has never asked for any money, and she has saved so many lives…”


At that, I know I am about to lose it. I get up and walk quickly out of the room as he continues talking. I get out of earshot before I burst into tears. I race to the clinic and grab a friend and research study coordinator with whom I have worked closely. Through tears, I tell her what happened. She is furious.


“Those men. Who are they? How can they do that to you? What do they know about you? To accuse you like that! If it had been a Ugandan, they wouldn’t even be here. You know why they are here, because they saw a mzungu, and they thought they could get some money. They thought you would get scared, and offer them a bribe. Ha! They went after the wrong mzungu.”


It is entirely plausible. She is dismissive of the men, and that helps me feel better than nothing will happen. She reassures me that E will send them packing.


It takes me about half an hour to compose myself enough that I can prevent myself from crying again. E is still in there. While I am waiting for him, I place a call to Dr. W, who had operated on the patient with the ectopic pregnancy. I am embarrassed to suddenly start crying as soon as he answers, but I can’t help it. I need his advice. He is seeing patients in his private clinic and offers to stop immediately and meet me. I tell him not to leave his patients, that I will talk to him later.


Finally, E comes to find me and although I am feeling calmer, I am still pretty freaked out, and I need his reflections of what has happened.


He is bluntly dismissive and critical of the men. He tells me that they are just looking to make trouble, but that he won’t allow it. It surprises me to hear a Ugandan, and especially one as mild and diplomatic as E, use such harsh language. Clearly, he is upset by what has just happened. He tells me that he doesn’t know the priest himself, but he does know that one of the men in the room was a police officer. I get nervous when he says this, but he assures me that the man claimed that he was not there acting as a police officer. He also tells me about some negative experiences he has had with that particular police officer in the past.


“Veronica, I feel so bad. I don’t know how I am going to ever apologize to you. I don’t know why they didn’t call me first. OK, I know why. But they should have called me, not you. I would never have even called you. You did the right thing in calling me there. In fact, I told them so much about you that now I have told them that they need to come here and apologize to you.”


“They’re coming here?” I ask. I’m not sure I want to see them. I know I will get angry again, and I am in no mood to accept an apology.


“Well, I don’t think they are going to come, because they are afraid.”


“Afraid of me?”


“I don’t know. I told them so many things. I think they just are afraid now for having falsely accused you. I don’t know if they will come, but I told them they must."


I would prefer never to see those men again. But in the back of my mind, I have visions of what I would do if they did attempt to apologize. Maybe I would lecture them on their own hypocrisy. Maybe I would ask them where they were when I was operating on a patient who nearly bled to death on the OR table. Maybe I would refuse to allow them to say anything, but insist that we all walk over to the children’s malnutrition ward and stand in the middle of it while they apologized to me. I would say ‘What are you doing for these children who are already born? Are you saving their lives too?”


Of course I would never have the guts to do any of those things. But would I accept their apology? It is hard to imagine. I am so angry, so offended, so infuriated at their behavior. An apology is not enough. Maybe I would spit the polo shirt priest’s words back to him “But you are not showing any remorse!”


E and I continue to rehash the situation. He notes that he was naïve about this organization, and that I had pointed out on Saturday that they sounded suspicious. Of course, being American, I already know what any organization with “Life” in the title is and does. But as a Ugandan, it doesn’t have that particular significance.


E tells me that he feels guilty for having brought the patient to me in the first place now because it caused so much trouble, but I disagree. I tell him I am glad he did, because she still needed my medical care, and whatever happened afterward, she still needed an ultrasound and deserved access to care.


He makes a good point that I hadn’t thought of – he is frustrated that the accusations of these men caused us to reveal private health information of this patient. He is right. I hadn’t even thought of that. They had no right to ask me to justify my actions, because they are between me and the patient. It is even more of an injustice that they think they have the right to intervene, and violate her privacy. I feel like a jerk for telling them anything. But I can imagine how much more fierce their attack would have been if I had refused to tell them anything.


I ask E for one more favor before we leave. I ask him to call Dr. K, the Ugandan head of our research collaboration. He is a wise and influential man, and he has always appreciated the fact that I do clinical work. In case this problem goes any further, I want to be sure he is aware of the situation. I know he will be supportive. E assures me that he will call.


I am still pretty stunned about what happened. I usually work later, but I can’t focus on work anymore. I am still processing everything, running through it in my head over and over in shock. How did I go from doing an ultrasound on someone to this? In fact, I am lucky that this particular patient was introduced to me by E. But this easily could have been any random patient in the wards. People here know that I will even stop people who are wandering around the hospital grounds if they look particularly sick, to make sure that they are getting care, and if they aren’t, then I see them myself. What if this had happened with a patient I had randomly met? These men would have said I was wandering around talking women into having abortions, and then doing them, and I would have no one to backup my story.


I apologize to the visiting lab technician, who has now been waiting for me for a couple of hours, without knowing why I disappeared from the lab. She is very accommodating, and I drive her back to our house, then come back to the hospital to meet some people for dinner. When I drive up, I see Dr. W, the PNO, and Rose standing outside talking. They all turn to me as I drive up, and from their faces, I know what they are talking about.


Dr. W walks up to me immediately and takes my hand.


“Veronica, I am so sorry. That is terrible what you went through --“


He can’t finish his thought, because the PNO bursts forward, edging him aside. There are tears streaming down her face and she wraps her arms around me. She starts sobbing and then I am crying, too.


“I am so sorry, I am so sorry,” she says. “That was so terrible. What those men said to you. I can’t believe it."


All three of them express their support and sympathy. They are outraged. I very much appreciate their support. I had been slightly worried that people might partially believe the accusation, but I can tell that there is no doubt in anyone’s mind that it was not only false but preposterous. In fact, it IS preposterous. Every single person on that hospital grounds knows what I do. I blend in about as well as Joe Pesci in rural Alabama. There is no way I could ever do an abortion without people knowing.


Later, I call the SHA to thank him for his kind words. Before I can say anything to him he starts apologizing extensively for getting me involved.


“These men were bothering me all day before I called you. In fact, I spent two hours ignoring them in the morning, because I knew what they wanted was nonsense. Then I went for lunch, and they were waiting for me. I told them ‘I am a very busy man, I have to do many things for this hospital I can’t only be with you.’ But finally in the afternoon, I had to see them, and I could not avoid it any longer. I didn’t want to call you but they would not leave my office. I wanted to throw them out, but I am a public official, I can’t. “


“Of course you had to call me,” I reassure him. “Those men were after blood and you had no choice. But I want to thank you for the things that you said. You said such nice things about me, and you couldn’t have been better. I know how hard you were trying to defend me from them, and I really appreciated. When I heard you talking, I knew I had support.”


“You always have my support, doctor. I meant everything I said. Those men don’t understand how much you have done for Tororo. But also the things which you said were very good, very good.”


“Thank you. I was trying to stay calm, but I was very angry with them.”


“You were very calm. You said the right things.”


I can tell he is as shaken by the encounter as I am.



That night, I sleep poorly. I wake up thinking about the situation. I still haven’t quite processed my feelings. I’m not as angry as I thought I would be, and I am unnerved and saddened.


The men don’t return to the hospital after that incident. It seems E really did his job in making them feel ashamed of their accusation. When I first arrive at work the next day, I am a little on edge. Then I run into Sister P a senior midwife I know well. She walks right up to me.


“I am so sorry for what happened, doctor. I heard from Sister. It is terrible!”


“Thank you. It was terrible. Those men were vicious.”


“They are terrible! Doctor, I hope you will not stop your work here.”


“Of course not. I would never stop. And if the same case happens tomorrow, I will do the same thing.”


“I am relieved. We were discussing and we were worried, maybe you would be afraid and you would stop your work from what happened.”


“Never. I wouldn’t stop, because we can’t let them win.”


“That’s right! They can’t win."


That is how it goes all day. I run into midwives or nurses or anesthetists I know, and each one shakes my hand and apologizes deeply for what happened. Every single person expresses their support and gratitude toward me. It is pretty overwhelming. The first thing everyone does, is apologize profusely for the trouble. The second thing they say is that they hope I will not stop seeing patients. Not one person has any doubt about my innocence.


E tells me that he spoke with Dr. K, who seemed to understand immediately what had happened, as if he has seen it before. After expressing his sympathy and support, E tells me, his first comment was “I hope she will not stop seeing patients.”


For several days, people ask how I am doing, whether I am still upset. After about 2 days, the shock passes. I realize that this episode showed me that I was completely incorrect in my concerns that the accusations would taint my reputation at TDH. On the contrary, rather than being in danger of false accusations, I have an incredible network of support from people who know and respect my work. I have a community here, one that was unafraid to come to my defense. The thought kind of blows me away.


People who know that I work here often give me kudos. I am polite, but I don’t think I deserve them. I don’t think that what I do here is particularly brave or heroic because it’s not something that requires moxie. It’s not running into a fire, or fighting a war or standing up to an unjust institution or staring down police dogs and fire hoses or protesting an oppressive regime. It’s incredibly fun and satisfying and amazing. It’s working with really pleasant people and feeling like I did something good with my time. But I do think that what the people in this community did to support me was very brave.


I have had difficult situations in the past, and have found that the people you most expect to defend you often fail to do so. I used to be devastated when these things happened, but as I got older I realized that true loyalty is rare. So to find that the people in this small town - most of whom of are a different culture, religion, background, socioeconomic status than I am, and who are just as vulnerable to being attacked by these men – didn’t blink before defending me to these potentially powerful and vindictive people is astounding. I am no longer angered by the attack. I am profoundly grateful for the community I am a part of here.


Oddly, what made me a target for these men also protected me from them. Being a mzungu, I stood out, and I was a tempting takedown for men who either had something to prove, or wanted money. But also being a mzungu, I stand out in a good way. My presence is noted, my work is appreciated, and I have the ability and resources to come here and do this work without charging money. Of course I am angry at these men for their viciousness and their bullying. But I can’t be indignant about being accused when I know that these men and people like them have probably gone around hunting others, and those others were probably Ugandan. I doubt that a Ugandan would have as much protection as I did, and I am afraid for those people. I think of the people around the world who are doing abortions illegally – many of them are unsafe, but some also know what they are doing and do them well but risk persecution. As a woman, as an American, as a doctor, I am a very lucky person.

Saturday, January 29, 2011

A Salty, Prickly Gift

I return to Uganda in January, and my reception is sweet. The clinic staff is happy to see me, and I get exuberant hugs from the midwives.
Even some of the grouchier nurses, who were hard to win over originally, receive me warmly. One In-Charge nurse, Sister A, a sometimes intense and surly individual, stops by the clinic to talk to someone, and she doesn’t notice me seated in front of her. I’m not sure how she can miss my glaring white skin. Finally, I joke, “You don’t want to greet me?”
She finally looks at me and jumps in surprise, then lunges toward me and punches me hard in the arm, turning it into a hug. Then she laughs and shakes my hand.

I walk around the hospital grounds looking for the other nurses and midwives I know so they will know I am back. I can’t find anyone on the female surgical ward, though. Later, I run into one of the nurses from female surgical.

“You know, your friend, she lost a daughter.”

“Which friend?” I ask.

“The one you operated on, I don’t know what it was, for something?”

I remember who she is talking about. It was a woman she had introduced to me as her "sister". The woman was around 50 years old, had HIV that was well-controlled, but she also had severe uterine prolapse. I did a vaginal hysterectomy on her.

“Your sister?” I ask.

“Well, I say my sister but she is not my sister, she is my cousin. She is the daughter of my father’s brother. My sister-cousin.”

This is usually how it goes here. Relationships are fluid – people will say “my auntie” or “my sister” even when the person is a distant relative, or even just a friend. It denotes a close relationship, especially when they want you to help the person. I don’t mind.
I remember the woman well. I liked her a lot. She was very educated, spoke excellent English, and had sent all of her children to university, including the girls. She was very proud of her children’s accomplishments, and she was meticulous about her HIV care. It is rare to find someone that educated and that empowered in this rural area.

“Yes, how is she?” I ask.

“Well, she is ok, but she is not very ok. She lost a daughter,” the nurse tells me.

“That’s terrible,” I sympathize. “From what?”

“Well, the girl was a university student, and she got pregnant, and she didn’t tell anyone. And she went and had it removed, and she died. Imagine! In University! She didn’t tell anyone.”


A few days later, I am at the clinic late, finishing up some work. I realize that it is almost 7pm, and I need to rush home before the sun sets at 7. I drive a motorbike that is old and decrepit, and the electrical system doesn’t work, so it has no headlight. It’s good for me because it forces me to go home before dark. I really shouldn’t be riding such a thing at night anyway. On my way out, I poke my head in the window of the office of E, a Ugandan colleague. He has a leadership role within our research clinic, and I respect him a lot. There are two local women in his office, which is unusual. He doesn’t see patients often, and they are not employees.

“Is everything ok?” I ask, noting their presence.

“Not really. Can you come in for just a quick second?”

I walk around to the door and enter, shaking both women’s hands in greeting.

He asks me, “How far along do you think her pregnancy is?

I look at the belly of the woman he is pointing at. It is small enough that I wouldn’t assume she is pregnant, and yet there is a certain bulge there.
“20 weeks?” I guess, still wondering what this is about. Does she want to enroll in our study for pregnant women? Is she supposed to be further along? If so, it could be growth restricted.

He asks the women to guess how many months that translates to. They can’t. He explains that it is about 4 months.

“She thinks she is about 2 months,” he says.

The pregnant woman has her eyes cast downward the whole time. She is wearing a 3-inch crucifix around her neck, the kind that has a miniature Christ carved into it. The other woman, who speaks some English, looks confused.

Finally, he turns to me and says, “They want an abortion.”

Oh. I see.

This is a really hard situation. At home, this would be easy. But here, abortion is illegal. At home, I would do it. At home, even if it were criminalized in my lifetime, I would probably still do it. It’s not really a question for me, and I don’t struggle with it. But I am not willing to do it here – I am not that brave. A Ugandan jail does not sound appealing. But more than that, it is the laws of a country I am a guest in, not my own laws. I feel that, as a foreigner, it is not my place to decide to violate the laws of this country. Even more than that, I wouldn’t want to risk compromising all the other work I’m doing here. It would be deeply unfair to the research collaboration and all its employees to risk associating them with illegal abortions. It would also stop me from seeing all the other patients I have been able to help.
Maybe it is cowardly, maybe a part of me would like to be able to throw caution to the wind and say “I am brave enough.” And maybe others would be brave enough, but I am not.

As a foreigner, would I be more at risk or less at risk than the Ugandans who do illegal abortions? I know that they are being done, everywhere. I have seen so many women bleeding and infected and nearly dying as a result. And for each one of those, there are maybe 100 who had no complications.
I know my position on this – I already had to turn down an even more compelling case, and even that one still haunts me. The women who see abortions in Uganda are desperate. I want to be able to send them somewhere safe, where I know that they will receive adequate counseling and a safe procedure if that is ultimately the woman’s decision. Ugandans are so stoic, so I can only imagine the shame and desperation they must be feeling to approach us and ask for this. I want her to know that I do not judge her for wanting an abortion, so she doesn’t have to feel ashamed with me.

“In my country, in US, abortion is legal, so I don’t mind that you are asking.”

The attendant nods but looks confused. “Tomorrow?”
She is not getting me. E tries.

“Do you know where doctor is from?”

She can’t guess: “Far.”

“You are right, she is from far,” says E.

I try to hint, so I say “Obama.”

“Do you know which country Obama is president of?” asks E.

“Kenya?” she says. She can tell from our reaction that she’s not correct. “America?”

“That’s right, America. Doctor is from America. In America, women can have abortions,” he says.

“Yes,” I say, “so for me, I don’t mind. But in Uganda, it is illegal. We cannot do an abortion here.”
The attendant understands.


E and I discuss what to do. At 20 weeks, it is unlikely that anyone would be able to do an abortion safely, as the equipment wouldn’t be available here. But I feel her abdomen and realize that her uterus is not palpable – she might be early still.
She is 30 years old, and has 5 children. She keeps her eyes downcast, and only looks at me when I address her, although she knows no English.

“When was her last menstrual period?” I ask.

“She doesn’t know. She was on injection family planning, so she didn’t get one for months,” E tells me.

“How does she know she is pregnant?”

“She went somewhere, and they told her she is pregnant,” her attendant tells us.

“Did they take her urine?” I ask.

The attendant translates, and the patient shakes her head no.

“Did they do an ultrasound scan?”

Again, no.

“So how can they know she is pregnant?”

No answer.


E suggests sending her to a woman he knows who is doing some kind of research study on why women want to have abortions, and how much they know about it. I haven’t heard of this person, but it could be an interesting study. I once saw a study presented on pre- and post-abortion counseling from Uruguay that was quite revolutionary. But I doubted this was the same thing.
In addition, why send this woman to a study when what she wants is care? He says that the woman doing the study can do appropriate counseling. Maybe, but who can counsel someone truly objectively unless they are actually capable of performing an abortion? If it’s not legal here, then how can this person provide that counseling?
Finally, he tells me that she is funded by some organization called something like “Human Life International.”
That sounds incredibly suspicious. And like a bad idea.
To me, it is unethical to send these women to someone who might berate them, or lie to them, or worse, get them in trouble for seeking an abortion. I don’t trust anyone.

I realize that if she is 20 weeks, no one will be able to do anything. And at this point, how do we even know she is pregnant? Maybe she thinks she is pregnant because she has not had a period, and maybe she’s wrong. Maybe she is third trimester with growth restriction. Maybe she has an ectopic pregnancy. Who knows? What if she goes to this “Human Life International” group asking for an abortion, and gets arrested when she is not even pregnant? Before we send her anywhere, I should at least do an ultrasound to check for pregnancy and for gestational age.
I don’t have access to the ultrasound on the weekend, so we instruct her to come back on Monday. We also tell her about the dangers she might encounter if she does try to get an illegal abortion, especially if the pregnancy is as far along as we think.


As I ride my motorbike home, I think of the words of an American friend who struggled with the decision of whether to keep an unplanned pregnancy. Aware of how lucky we are to live in a country where we have the choice, she spent weeks crying and talking and deliberating. Later, reflecting on her ordeal, she wrote to me in an email: “Choice is a salty prickly gift if you’ve got a conscience.”

In the United States, people who believe abortion should be illegal call themselves pro-life. People who believe it should be legal call their opposition anti-choice. Neither term is particularly accurate. Abortion is far more common in places where it is illegal than where it is legal, so criminalization doesn’t “save” any lives. But making abortion illegal doesn’t take away a woman’s choice, either. It changes that choice. When abortion is legal, the choice is between bearing (and usually raising) a child, and undergoing a safe, minor procedure. When abortion is illegal, the choice is between bearing (and usually raising) a child, and undergoing a procedure with the risk of death or imprisonment. Apparently, for many women, that is still a risk worth taking. Perhaps the appropriate term would be pro-criminalization. I doubt that terminology makes a difference in something as polarizing as induced abortion, but I also wonder if most people who think abortion should be illegal understand what that really looks like. Then again, that doesn’t seem to be the part of the equation that individuals in favor of criminalization are interested in.

Those who oppose abortion use the term “abortion on demand” to make it sound as easy as watching a pay-per-view movie. Anyone who knows a woman who has considered an abortion knows that this is far from accurate. What stops a woman from getting an abortion is her own conflicted emotion about the pregnancy growing inside her. Some think that showing women an ultrasound of their pregnancy will create guilt that will deter them. That guilt is a drop in the bucket compared to what these women already feel. Women are not children; they think long and hard about their decisions, and often do what they know is best with a heavy heart – whether that is continuing the pregnancy or terminating it. The idea that these decisions are taken lightly is disrespectful.
Trust women.
Wanting to criminalize abortion is a legitimate position, even though I disagree with it. But disregarding the torment that most women go through in making the decision is unacceptable.

I don’t know what will happen to this woman if she is pregnant. I will do her ultrasound, and try to explain why illegal abortion can be so unsafe. I want her to think about the consequences to her five living children if she were to die from an unsafe abortion. But I also know that if she made such a huge effort to come from the village and wander around the hospital asking for what she knows is an illegal procedure, then she is unlikely to be dissuaded from her search. I hope, at least, she will know enough to ask questions about safety. I don’t know what her emotional state is, since I can’t speak to her, but I imagine this was a wrenching, bitter choice for her.

Thursday, December 9, 2010

Oral Board Exam

Back in the United States, I am about to take the Obstetrics & Gynecology Oral Board Examination. It is an exam that all Ob/Gyns fear and dread. We discuss it endlessly in training: “When you take the boards, make sure you say xxxxx.” Everyone who has taken it has their story about what questions they asked, or how scary and poker-faced the examiners were. Even older physicians who are decades out from their oral exam betray a very visceral retelling of their experience. And here I am, about to complete this monumental event. It’s like an Ob/Gyn bat mitzvah.

Part of the exam requires that you collect cases that you then submit the list to ABOG (the American Board of Obstetrics and Gynecology) for approval. These cases are in three different categories – obstetrics, gynecology and office practice. The obstetrics cases are either cesarean deliveries or complicated obstetrical inpatients. The gynecology cases are either gynecologic surgeries or inpatient gynecologic cases (such as pelvic inflammatory disease). The office practice cases are patients seen and managed as outpatients. Within the three different categories, there are many subcategories of which you need to fulfill a certain number, to demonstrate the diversity of your practice.

I collected all of my cases in Uganda. This was a daunting task. I didn’t know anyone who had previously taken their boards by collecting cases from a developing country. Would ABOG let me do this? Would I be penalized because my diagnostics and management resources would be limited? Was it crazy?

But then again, what is obstetrics and gynecology if not applicable to the entire world? What kind of message is that sending if ABOG only allows cases from developed countries? Does it mean we can’t provide adequate obstetric and gynecologic care without abundant resources? In truth, obstetrics and gynecology are very bare-bones specialties. They require a history, a physical exam, a pelvic exam, a scalpel, and a suture. Pregnancy testing, ultrasound, and some basic medicines (oral contraceptives, oxytocin, antibiotics) help a lot, too. We have added very valuable resources into our practice, such as epidural anesthesia, electronic fetal monitoring, CT scans and serology, but you can do a lot without those things.

Nothing in ABOG’s regulations precludes entering cases from other countries. I wrote to ABOG, and they were remarkably supportive. They made some modifications to their procedures to make it easier for me to submit the required documentation from Uganda, which I very much appreciated. I took this as a good sign.

As I collected my cases, I tried to fit them into the predetermined subcategories. This was difficult. For example, “Hyperlipidemia” – I can’t check cholesterol in Uganda, nor does it really matter. Life expectancy isn’t long enough for most people in Tororo to worry too much about cholesterol levels. (Besides, what would someone do if they had high cholesterol? Take a statin? Change their diet? Most people are lucky to get the food they can.) There were other subcategories that required laboratory testing or pathology diagnosis to meet the criteria, and I had to ignore those. That left me fewer categories to work with, but I made it fit.

When I got back to San Francisco, I started showing people my list for editing advice. Everyone said the same thing “Your list is crazy.” It is? I couldn’t see it myself. I knew that it was a little different from the others, but this was my life for a year, and I suppose it had come to seem normal. I guess most lists don’t have seven ruptured ectopic pregnancies, but really, was it that different? People on my list had abnormal bleeding, infertility, preeclampsia, fetal distress, cervical cancer, pelvic organ prolapse, pelvic inflammatory disease, HIV. Was this really so different from everyone else? Maybe because I trained in the Bronx, I’m used to seeing a high level of abnormal (and “rare”) pathology. But even my Ob/Gyn friends in the Bronx thought my list was crazy.

I started to get nervous. Once I had submitted my list, ABOG could still reject it. I had paid about $1300 to take this exam already. If they rejected the list, I would lose all that money, and have to spend another year collecting cases. As it got closer and closer to the date on which I was supposed to hear from them, I got increasingly anxious. Had I missed the letter? Had they rejected my list? I started paranoiacally checking their website (which is stuck in 1997, apparently) and calling them – to which I got no response.

Finally, exactly one month to the day before I was supposed to take my exam, the letter came. My list had been accepted, and my date was set for December 8, 2010.

Relief hit me. Then paranoia again. Wasn’t that Pearl Harbor Day? Crash and burn! Kamikaze! Is that a bad omen? Noooooo! Then my superego stepped in and calmed me down. I was being superstitious, and besides, Pearl Harbor Day is December 7. Sheesh.

I spent the next month studying assiduously. I practiced answering questions, and solicited advice from anyone I could find.

And now, here I am, on the plane on the way to the boards. The captain asks us to turn off our electronic devices, so I pull out some good old-fashioned paper reading. I decide to review my case lists, which I have printed out in preparation for tomorrow.

As I look through my cases, I remember these patients. The woman with ovarian torsion who was basically saved by the nurse, who was so concerned about the patient’s severe pain that she called me in urgently. (Sadly, this is not to be taken for granted.) The patient tried to give me a chicken after the surgery to show her gratitude. The woman with pelvic inflammatory disease two months after a delivery who stayed for much longer than she needed to because her IV antibiotic doses kept getting missed by the nurses for days at a time. I finally gave her oral medication and figured she could be more adherent taking that at home. The woman with a tubo-ovarian abscess whose pelvis was so scarred that I couldn’t do anything at all in the surgery – I washed with some sterile saline and closed her back up, feeling guilty. Somehow, that resolved her symptoms, and she came to visit me in the clinic, convinced I had saved her life and forever grateful.

As I think about these patients, my anxiety level reduces. I have such affection for them, and as I read their cases on my list, I wish I could show the examiners a photo of each woman, to describe the three-dimensional person behind the case. I also remember the feeling of being in Uganda, and how much I loved it. I remember the frustration of trying to track down an anesthetist, or schlepping the ultrasound back and forth to the ward, or sweating as I try to evaluate the patients who need me as the afternoon rainclouds close in and threaten with a dense humidity. That frustration was very real, but never once did it compare to the enormous satisfaction I got from doing the work. Shaking hands with a patient who was grateful to be cured, or just grateful that I was giving her any medical attention at all. Seeing a healthy mother and healthy baby after a cesarean in which I wasn’t sure that either was going to survive. Laughing as I speak in English and a patient speaks in Japadhola or Ateso, but we both wave our arms frantically and somehow manage to communicate something. Seeing a patient whom I had treated for an ectopic, proudly exposing to me her lovely pfannenstiel (“bikini cut”) scar and thrilled with how it has healed painlessly and almost invisibly. Whipping out my practiced Ugandan English accent, and seeing the patients’ sheepish, shocked and relieved smiles that they can actually understand me, despite all that glaring white skin. Walking with the midwives to the police station to support the arrested midwives, singing “We Shall Overcome” and a Ugandan civil rights song to entertain ourselves, and feeling indescribable pride to hear the midwives say “Dr. Veronica, you are really with us.”

No, I couldn’t have had a better year if I had planned it.

I love this job so much that sometimes I am surprised - that it all worked out in the end. Surprised that I had no clue what I was getting into when I chose premed, but that apparently I chose right. Surprised that the lazy memorizer and multiple-choice-overthinker turned out to be a mild workaholic with a pretty good memory for the stuff that counts.

When I go into the exam tomorrow, I am going to carry these memories with me, because they are the ones that motivate me to work my hardest, and to know that I know what I am doing, and I can practice obstetrics and gynecology competently. I want to walk into that exam room not as if I am going to walk into a barrage of esoteric questions, but a room full of Tororo patients, whom I have to evaluate and treat in a logical and safe way to the best of my ability. I can do that.

Monday, October 4, 2010

Excision

On my first day back in Tororo, I spread the word about a couple of patients that I would like to see again. I have no contact information for them, but Tororo is a small community, and someone who knows someone will eventually tell the people I am looking for that the mzungu doctor is back at the malaria clinic and wants to see them.

One of these patients is a 17-year-old girl whom I have been treating for a few months. She first came to my attention when she was 35 weeks pregnant and admitted on the antenatal ward and was being treated for “vaginal discharge.” The Ugandan medical student had mentioned her to me, because he noted that she had been given several different antibiotics, but from having seen other patients with me, he suspected that this was, in fact, a yeast infection.

I was very happy when I heard him say that. I have found that patients (in Uganda and in the US) are often over-treated for vague vaginal symptoms – especially discharge – without an adequate assessment. These cases are often called “cervicitis” or “bacterial vaginosis” – which are real infections, but have strict diagnostic criteria that are frequently not met, or even attempted. I find that around half the time, the women in question actually have a yeast infection – either that was their presenting complaint, or the antibiotics they were given caused it.

So I was glad that this student had learned to second-guess the knee-jerk prescribing of antibiotics for vaginal discharge that occurs so often.

I asked him to tell me more about the patient, and I discovered that there was more going on than just discharge. She had HIV (at 17….sigh), and some strange lesions around the vagina.

We went to her bedside. She spoke only Japadhola, so someone translated for me. I could tell she was not forthcoming with her responses. Most of her answers were one or two words. She looked sad, nervous and alone. She didn’t look me (or anyone) in the eyes.

She said that the lesions had been there at least a year, and were growing. I asked to look at them, and I was given gloves.

On exam, the problem was glaringly obvious. She had massive genital warts covering her entire labia on both sides. The introitus (vaginal opening) was barely visible, although it was still there. There was a thick white discharge coming from inside, which was most likely yeast given her HIV infection and recent antibiotic treatment.

The genital warts were truly terrible. I couldn’t imagine how she could walk or urinate normally. She was probably constantly aware of these lesions, every moment of the day. It must have been awful to live with, especially not knowing what it was.

I wanted to be sensitive about asking about HIV, since we were in the antenatal ward with lots of patients just outside the thin curtain. I quietly asked when her first intercourse was. It was at 14. I imagine she probably got HIV and HPV around that time as well. And in all likelihood, that sexual experience was not consensual. I didn’t ask.

Managing her warts was a difficult problem. It was clear I had to do something about them, but what, and when? I didn’t want to risk doing something complicated while she was still pregnant. I consulted a lot of people about her – including people in San Francisco and people in Kampala, and all were very helpful.

The midwives were concerned that she would require a cesarean. Can the baby even come through that opening? And would it acquire the warts? In truth, she could, and should, deliver vaginally. The vaginal opening would still stretch to accommodate the baby’s head, and the risk of passing warts to the infant was extremely low. The risk to the mother of complications from cesarean was much higher, especially given her HIV, and her likelihood of many future pregnancies. I made sure I told as many midwives as possible, as well as the medical student and the patient herself that she should be allowed to labor as normal. I also wrote it very clearly in her antenatal card.

What to do about the warts themselves? There is an effective medical treatment, called podophyllin, that I am familiar with. But I was reluctant to use it before delivery, and anyway, would it even work with such extensive warts? I contacted a colleague of mine who has expertise in HPV (the virus that causes genital warts as well as cervical cancer, although different strains cause each disease). She had seen such cases in Kenya, and told me that podophyllin would be complicated in this case – it would cause too much necrosis (dying of tissue) and would likely lead to infection. A better option in severe cases was surgical management; namely, cutting off all the warts. I would have to do it after the postpartum period.

Was there anything I could do in the meantime? I thought about HIV medications. I sent for a CD4 count through the hospital system, although it takes a long time. If her CD4 was low enough, she could qualify for antiretrovirals (ARVs) under the Ugandan Ministry of Health Guidelines. But ARVs might improve her immune system, and might help reduce the size of the lesions as a result. If I waited for the CD4 results, she would only be on the ARVs a short time before delivering. I consulted a physician in Kampala who was more familiar with the guidelines, and she said that severe genital warts would qualify the patient to start ARVs, regardless of CD4. That was good news for the baby, too, because it would reduce the likelihood of HIV transmission. I started her on triple therapy.

The patient was in and out a few times before she delivered. I saw her sometimes in clinic, and sometimes in labor ward. I treated her for yeast infections a couple of times, and she did improve after treatment. The warts stayed about the same.

I wasn’t aware when she was delivering. I heard later that she had delivered vaginally without complication. My instructions had worked – no cesarean was needed.

When I saw her postpartum, the baby looked OK, and the warts were still there. I discussed with her the options for management of the warts, and explained what the surgery would be like. The conversation was difficult, and I had S, a physician who speaks Japadhola, with me translating everything. I had to be very honest about the surgery – it would affect her entire external genital area, and there would be a lot of pain. I would give her pain medicine , but she would have a hard time walking at first, and would probably require a catheter to urinate for a few days to reduce the pain.

I remember this conversation well. This girl, unlike most Ugandans, never smiled. Her face never betrayed any emotion. When she was overwhelmed, tears would suddenly roll down from her eyes, over her expressionless face. It was heartbreaking. I couldn’t imagine what kind of suffering she had been through in her 17 years that had caused her to turn so far inward. Whenever I saw her, I wanted to hug her, to mother her. But she didn’t ask for mothering, and seemed not to notice my touch, or my sympathy. She kept coming back, so she must have realized I would help her, but there was no sign of it on her face, only silence.

During this conversation, her tears flowed. Periodically, she picked up the bottom of her not-very-clean T-shirt and wiped her face, and stared down at her lap again. After gentle but extensive discussion with S, she told us that she wanted the surgery, but she had no one to come and care for her. She was alone in the world. S prodded her – it is rare for Ugandans to be completely alone. There is usually someone in their extended family or community that they can depend on. She admitted that she lives with her grandmother, but her grandmother is poor and old, and can’t come to care for her.

I knew this surgery would be too difficult for her to be alone postoperatively. She had to care not only for herself, but also for the child. We emphasized to her that anyone who cared for her would not have to worry about catching HIV. If that were a concern, we said by way of explanation, then we would also have to worry about me as the doctor. I would be doing the surgery itself, and that was the most risk. If I was not afraid about catching HIV from caring for her, then no one else would have to be.

After more silent, stony tears, she agreed to go and try to find someone. She has sisters and sisters-in-law, but none of them want to help her. We gave her a sense of urgency – I would be leaving Uganda in only a few weeks, and I didn’t want to do the surgery in my last week here, because I also wanted to be there while she was healing and make sure that there were no complications.

The next week, to my surprise, she returned with a young woman, who had her own baby on her back. She was the second wife of the patient’s uncle. She was willing to care for the patient after the surgery. We went through the discussion again – how it would be difficult, there would be pain, and it would take at least 1-2 weeks to recover. Would she be able to care for the patient, the patient’s baby, and her own baby? She said she would leave her own baby at home, and she would be able. The patient had already told us that the woman knew about her HIV. We asked the attendant if she had any fears about catching HIV. She admitted that she was worried about it. We explained to her that we would provide gloves for handling any fluids, and that she could not get HIV by touching or caring for the patient or her baby. We explained how HIV is transmitted. She said she was OK with that, and she no longer feared that she would contract HIV.

We set a date for the surgery, and told them to come back.

The surgery itself was a first for me. I had done surgeries for genital warts before, but never so extensive. I talked to my colleague at length about the procedure, and what to expect. I had a smart medical student with me, who showed impressive intiative and a strong stomach. I will spare the details here, but needless to say, it was an extensive excision.

I tried my best to ensure that my patient received adequate pain control postoperatively. I gave repeated instructions to administer both morphine and anti-inflammatory painkillers. It is common for health workers here to overlook suffering because it is so common, but this situation was extreme, and I couldn’t bear the thought of my young, downtrodden, helpless patient – already traumatized by the shame of HIV and huge genital warts – having to endure this postoperative pain unmedicated.

I had her on antenatal ward instead of Gyn ward because the midwives knew her well, and because she had a newborn infant. I reminded every shift of midwives to give her pain medication as needed. To my surprise, it worked. She still had pain, but at least she had some measure of relief.

I also changed her bandage daily, and was surprised to find the healing relatively rapid and infection-free. Eventually, her attendant got the hang of changing the dressing, and I no longer needed to.

She didn’t get out of bed much, which was disappointing, although not surprising. The same was true of my other young, traumatized patient. Both were withdrawn in the same way, and I suppose that the only way for them to handle both the emotional trauma and the pain was to curl up and close their eyes. They were not engaged with the world.

After a few days, the wound was improving, but the patient was still in bed. There were multiple attendants at her bedside – or at least several women there to visit the attendant. They were sweet and grateful, and respected the patient’s privacy when I closed the curtain to examine the wound.

Soon after that, I came to the ward to find her bed empty. According to the midwife, she had just left on her own, without being discharged. That happened often, so it wasn’t too surprising, but I was still nervous about her. The wound was healing well and I wasn’t too concerned about infection anymore. But pain, difficult urination, limited mobility and poor hygiene could still be a problem.

A few days later, she came to find me in the clinic. S helped to translate. She told me she had left the hospital because the midwives had stopped giving her pain medication, and so she and her attendant didn’t see why they needed to stay anymore. It was a good point. I hadn’t realize that had happened, and I was disappointed, but not surprised.

I apologized to her for that. I knew that I had stopped nagging the midwives, hoping that the pain medication had become routine, but I was wrong. I should have kept nagging. I was so sorry that she had suffered. She told me there was still some pain, but it had reduced by a lot. I asked to examine the wound.

I found good healing, and just needed some improvement in hygiene. I explained this to her, with S translating. Using a male translator is a little awkward, but I don’t have any female options for translation. Besides, I like how S speaks to patients. He has a gentle and respectful manner, and he expresses things beautifully.

I told her that I wanted to see her every 2 days for now, just to make sure she was doing OK. If she had been a different patient, I might have said it was ok to see her once a week. But I knew she was alone, fragile and had few resources. I didn’t want anything to go wrong, and I wanted to be her safety net for now. I asked her if she could come that frequently, and she said she could.

She didn’t come back again. I left Uganda 2 weeks later. I left word with S to look for her and email me if she returned. He agreed, but doubted she would be back.

Upon my return to Uganda, she is one of the first people I look for. The midwives tell me they know people who live near her, they can pass the message to her.

Two days later, she appears in the clinic. She has the same poker face, and her chubby, adorable baby on her hip. I show that I am happy to see her. She doesn’t show any recognition or emotion, but she follows me dutifully into an examination room. S graciously delays his lunch hour to come and translate for me.

She had gotten my message from people in her community – that’s how she knew I was back. She is not having any pain, but does have discharge and itching. She has not seen any new warts since the wound healed.

I look at her as S translates. Unlike many Ugandans, even the poorest, she often looks bedraggled; her clothes are usually intact, but show signs of brown around the edges. I imagine she has very little clothing and can’t wash them very frequently. Her hair is shorn close as many women’s hair is here. But her baby is wearing a cute baby outfit and swaddled in a bright, clean blanket. He has chubby cheeks and large eyes. He stares intently and smiles and laughs in response to eye contact. He starts to cry at one point while we are talking, and she tries to soothe him while maintaining our difficult conversation. Eventually, he is insistent, and she allows him to breastfeed. He seems well cared-for.

I ask how she gets money to feed herself and the baby. She says that if people need work in their fields, she does digging and they pay her. It is hard work, and even harder with a newborn infant.

I ask about her HIV meds. After she delivered, no one gave her any more meds. It is always hard for me to figure out why this happens. Sometimes patients just stop showing up; sometimes they try to get meds, but they are refused at the health care facility. When I try to investigate, no one is ever forthcoming about what happened or why.

Her CD4 had come back before I left Uganda – it was above 500, which means she would not be eligible for ARVs under current Ugandan guidelines. It’s unfortunate, especially since she is breastfeeding and her risk of transmission to the infant is high. Nonetheless, she needs to be enrolled in some HIV clinic – to get Septrin (an antibiotic that prevents opportunistic infection), to have follow-up, and to eventually get ARVs when she does qualify.

I start to bring this up, and S conducts the discussion in Japadhola. I like how he expresses things, so I don’t force myself into the conversation. Eventually, he always translates for me what he has said to the patient. We would prefer for her to go to TASO (The AIDS Support Organization), which has a clinic nearby. TASO is the oldest AIDS care organization in Uganda – before ARVs, it provided supportive care. It is a fully Ugandan organization, and it is well organized, with standardized procedures and organizational cohesiveness. Patients get not only medication, but social support, nutritional supplementation and counseling. Because it is more comprehensive, reliable and organized than the hospital’s HIV clinic, I prefer to send people there.

I don’t speak Japadhola, but I can tell that there is some kind of confusion in the conversation. S tells me that the patient is telling him that she knows where TASO is, but she can’t go there because it is too far. TASO is across the street from our clinic. He stands up and points across the street to TASO, which is visible from the window. She still insists that it is too far.

“I am telling her, ‘We are your friends. We want to help you. You can tell us the truth. If you don’t want to go to TASO, it is ok, but tell us why. Because it is very close to here, and you can come here.’”

Finally, she explains her reluctance. Her neighbor works at TASO, and she is afraid that if she goes, the neighbor will see her and know that she has HIV. The stigma of HIV is still a very real problem, and a major limitation in access to care.

It is unclear what the neighbor’s job is at TASO. If she is a care provider, then she is mandated by her profession to maintain confidentiality. The patient thinks that she might be a cook, but she is not sure.

We then start to discuss the option of going to the TDH HIV clinic. She won’t get the social support and comprehensive care, and she will be more likely to fall through the cracks, but it’s better than nothing. She claims that she was going to the TDH clinic, but no one gave her any medication.

S sees the inconsistency in this, and begins to explore it in Japadhola. It doesn’t make sense. Even if she wasn’t given ARVs, she would be given Septrin – anyone with HIV gets Septrin. He asks details about where she went and whom she saw, and she has no details. He guesses, correctly, that she has never actually been to the clinic. He tells her again not to fear us, that we are her friends and we won’t be angry, we only want to help. She finally admits that she had never gone, although she says that there is no reason why. This is actually possible. Disadvantaged, ignored and helpless – it is entirely plausible that she wouldn’t have known that it would be very good for her to attend the clinic, or why. It would just have been a big effort for no specific reason.

We discuss the TDH clinic with her, and she sounds willing to go. We would really prefer to send her to TASO, and we mention it one more time, but I don’t want to risk alienating her, so we drop it quickly. I am a little afraid that she will get lost in the process at TDH. Will she actually show up? And if she does, will she be able to express why she was there, what were the different medical circumstances she had? Would they know she had a CD4 done? Would she, by chance, encounter someone unsympathetic or overworked or lazy who would turn her away? If she did, would she have the fortitude to insist that she belongs in that clinic? I can’t imagine that she would.

I can only do my best. I write a note describing her antenatal ARVs, and the genital warts excision, and I tell her to bring it to that clinic. Her child, who tested negative for HIV at 6 weeks (although is still breastfeeding) may be eligible for one of our pediatric studies, so I connect her with the coordinators of that study and the study counselor. I hope that at least if her child is in the study, she will have access to our clinic, and someone might ask after her own condition, and maybe even she will run into me once in a while, and I can check up on her.

Wednesday, September 22, 2010

Coming Back

I am back in Tororo for a brief visit. Only 2 weeks - much too short, but it's all I could fit in on this trip.

I am delayed by a day in Kampala due to car troubles, and when I finally arrive the next day, there are many hugs to be had. The midwives tell me they were excitedly waiting for me all day yesterday. It is wonderful to see them.

In the afternoon on the day I arrive, I am dashing out of the clinic to a meeting, and I see a woman sitting in the waiting area looking directly at me. When the patients who have come to see me (non-research patients) can't find me, they sit there, sometimes for hours, until they see me walking in or out. She is looking at me so intently that I know she must be there for me.

She approaches. She looks familiar, and I know I treated her for something, but I can't remember what. Maybe infertility? Pelvic pain?

"Are you looking for me?" I ask.

"Yes, for you," she says. "I have come many times for you, but they told me you are away."

"Yes, I am sorry, I have been away. What is your name?"

"P_____." I still can't remember what I saw her for, but it wasn't obstetric.

"Do you want to see me?" She nods. I can't see her now because of my meeting. I know that the next two days will be a blur of meetings because all of the investigators are coming to discuss all of the research that is going on. It should be calmer by Friday.

"Come and see me on Friday," I tell her. I give her my phone number and tell her to call before she comes, because I know that whenever I make plans like this, something comes up. I also tell her to bring any notes that I wrote, so that I can remind myself why I saw her and what I did.

The next morning, I find out that I need to go to Kampala for an urgent meeting on Friday. I feel guilty that I will miss P.'s visit, and I don't have any way to reach her. I hope she calls first. Just in case, I tell some of the study clinic nurses about her, and tell them that she should come back Monday.

While I am at work that day, I get a phone call from an unrecognized number. It is a different patient.

"Hello, Dr. Veronica! This is O______! The midwife told me you were here."

I recognize her name, because it is an uncommon name in Uganda. She is a college girl whom I treated after her illegal abortion went awry, and she had continuous heavy bleeding. I gave her misoprostol and the bleeding stopped. She was very grateful at the time and came to see me twice more to thank me before I left in July.
(The anxiety surrounding illegal abortion makes a mild complication feel life-threatening. The patients I treat after illegal abortion are often convinced I saved their lives, whether or not they were particularly ill.)

"Hello, O. How are you?"

"I am very OK, Doctor."

Now I am wondering why she is calling. Am I remembering the wrong person? Does she have an ongoing problem that I need to continue treating? There is an awkward pause. Finally, I ask.

"Are you calling me because you have a problem, or to say hello?"

"No, Doctor, there is no problem. I am only calling you to say hello and to thank you for helping me. I am very grateful. I am very happy."

The next day, I travel to Kampala. While I am on the road, I get a phone call from P. She asks if she should come on Friday and I tell her to come instead on Monday, but to call first. She agrees.

Half an hour later, I get a text from the same number: "Am so grateful thank you very much for the drug you wrote for me am happy and pregnant. God bless u. P_____."

It's good to be back.

On Monday, P. comes to see me, and I review my notes. She has HIV that is well-controlled on meds, and I had seen her for pelvic pain, infertility, and secondary amenorrhea (disappearance of menstrual periods). In order to try to determine the root cause of her amenorrhea, I started her on oral contraceptives for 1 month. When she started the placebo week of pills, she should have seen a period due to progesterone withdrawal. From my notes, it appears that she did not bleed after the 1 month of pills, so instead I gave her a 5-day course of progesterone, which is the same idea. Once the progresterone is stopped, she should see bleeding.

There are no more notes from me after I gave her the progesterone. She didn't come back.

She tells me that after the progesterone pills, she didn't see any bleeding, but about 2 months after that, she took a pregnancy test and it was positive. She is thrilled.

She had a history of two miscarriages, and had been unable to get pregnant for about 5 years. Her boyfriend (who also has HIV) left her because she couldn't produce a child. From my notes, I see that she had a hysterosalpingogram to see if her tubes are open, and she was told they are blocked. I surmise that I was reluctant to give her any ovulation-inducing agents in light of this information (no point in ovulating if the eggs can't get through the tubes), so instead I decided to focus on bringing back her menstrual cycle. As it turns out, somehow, unexpectedly (and without a period), she got pregnant.

I don't know if it was the medication I gave her that did it. I wouldn't have expected it, since she didn't have a period after either treatment. But she got pregnant soon afterward. Maybe the pills helped kick her regular cycle back into action, or maybe her pregnancy is just a coincidence. I don't know. Either way, we are both happy.

I confirm that she is still on her HIV meds and attending antenatal care. Her boyfriend is supporting her now that she is pregnant, although he is still in Kampala. Because she had no period, I decide to do an ultrasound to determine her gestational age. I'll admit that part of me is worried that the pregnancy is somehow abnormal or that it was a false-positive pregnancy test.

When I do the ultrasound, I see a healthy baby boy at 25 weeks. I turn on the doppler so she can hear the heartbeat. She glows.

As it turns out, her due date is in early January, and I just may be back by the time she delivers. I tell her to look for me when she goes into labor.